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“Nothing happens unless first a dream.” – Carl Sandburg


Bob: Bipolar upper or downer

Bob

Growing up I could not understand why people could not keep up with me, or why I seemed more emotional than others, or why I had lots of problems in school.

There is a good side to being bipolar. I took many new jobs in my past and did them with fervor. I had two paper routes at twelve, and started working in a circus at sixteen. Then I got a job in the greyhound racing business working 24/7 year round. I would work for two years for the same kennel owner and then quit for about six months to go to a new race track, get another job and repeat my two-year pattern. I was always number one or two in the kennel standings in the greyhound business. I also ran a fast food business, and grossed more than twenty percent higher than in all the past years of business. I ran a bike shop and rental shop and nearly doubled the business from years past. I also ran a guest house in Key West. I took a job at the largest exotic bird breeding farm in the country, and learned how to take care of birds of all kinds. I learned how to grow and read cultures in the lab and could diagnose what is wrong with a bird and how to treat it quickly. The bird has a better chance of living the quicker you know the problem and how to fix it.

In keeping in line with my pattern of two years at the job and six-month down time; it was time for a new job. I took a job in a bowling alley and learned how to fix the machines in a very short time. As usual I would be in charge of the alley in the first year there. This is about the time when I started going to CMH. I stayed at the bowling alley for about three years before starting my down time. This was slowed by a change of meds. There was a new owner at the alley by now. I quit him and took a job at another bowling alley. I had to learn how to fix a new type of machine. I was made the boss in very short time, but soon it was down time. And time for another change in meds.

All this led to a failed suicide attempt. After a short stay in the hospital and a change of medications, all was okay again. At this time the meds are doing their job. I feel good, so on to another day with a better understanding of my illness.

I am going to group therapy and art lessons, pathways which all seem to help some with my anxiety around people.

I have taken on some new hobbies like painting, growing daylilies and photographing them. I am breeding new daylilies in the house to put out next year. I spend a lot of time in the winter tying flies to fish with in the spring, my spring-time hobby.

I can’t stress enough about how getting the right meds is of utmost importance. Without them I would be a total mess or even worse, I would be dead.

Darlene: My Story

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I feel I have dealt with depression most of my life. I remember being sad a lot, tried to commit suicide before I was 18, and many times through the years.

My dad died when I was four years old. I was raised around alcoholics and their nonsense. My brothers were always number one; I was second, the black sheep of the family. I got teased a lot in school. In junior high the kids made a bet on how much I weighed; they even got a scale out. I felt so small, ashamed of myself, it made me cry. I didn’t want to go back to school. I hated myself back then. I already felt this way and the kids at school made it worse.

I have a blood brother and a half brother. My half brother raped me when I was 18. For the family’s sake, I didn’t tell anyone. Then a few years later he tried again, and then everything came out. I ended up with a nervous breakdown and in a psych hospital for the first time. The family didn’t believe me; a lot of good it did to hold everything in to keep the family together, it just tore the family apart. I spent many years in deep depression. I felt that I tore the family apart, even though it was my half brother.

My blood brother and I have gotten closer in the last ten years but we’re still not as close as I would like us to be, being that he is all the family I have left on my side of the family. He lives downstate; that doesn’t help me living north. Yet I feel even if I lived downstate our relationship wouldn’t get any better.

The best thing I did for myself was when I walked in the doors of Community Mental Health and asked for help in 2000. Since then I have been through three therapists, all very good, including the one I have now, and all the help from others at Mental Health. I tried many kinds of meds, and I like to think what I am on now is helping, along with all Northern Lakes CMH has to offer now. I go to three groups – DBT, Pathways to Recovery, and an Art Group. The art group is great; you can paint how you’re feeling or whatever you like, and it’s a great release for me. DBT has given me coping skills and is a big help when I can use them. I continue to work on my recovery by going to my groups, seeing my therapist, taking my meds, and using my coping skills. This is my second chance.

I have nine beautiful grandchildren and three great daughters. They are the biggest reason to keep me working on myself.

I collect butterflies – they represent freedom from depression – and peace signs, which represent peace in my head, love in my heart, and happiness in my life.

Julie: Two Faces

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My name is Julie and I am bipolar. I have two faces, the side most people see, and the other I hide except from my family and special friends. I always want to hide that I am bipolar, because that mental illness “stigma” leaves a small part of me uncertain and ashamed.

I hope telling my story will help me feel proud of who I am.

I love life. I am blessed with a wonderful husband, Chris; daughter, Amanda; granddaughter, Mia; sister, Jean; two Golden Retrievers, Kimi and Kallie; and kitten Kiefer. My family has always been there for me.

I am very creative. I quilt, play alto recorder, draw, and I am a dancer and choreographer. I am a former professor of modern dance at Kent State University and Artist-in-Education for children. I love expression and helping individuals to find their own voice through movement. When we moved to Cadillac, Michigan, I went back to school for employment as a Physical Therapist Assistant. I have worked really hard to stay stable and lead a “normal life.” I know I should be proud of myself, but I still wonder how can I be bipolar?

The first time I became sick I was 30 years old. I had no idea what was happening. I was on a wild roller coaster of ups and downs. Afterwards I found everything is typical of someone with bipolar illness, but that feeling of “flying” out of control is so frightening. Of course, I was hospitalized. Bipolar illness was genetic in my father’s family. Later I found that the doctors thought I was so ill I might never go home again. Fortunately, my family wouldn’t stand for that and everyone worked hard to help me return to reality.

I was on the long road to recovery – like a mirror had shattered and each little piece slowly put back into place. Who was that person in the mirror? I can remember feeling like a newborn learning about life, how to be with my family, and how to walk and dance again. My family was always there to help and dancing made me stronger and helped free my emotional anger at this illness. I challenged myself to stay healthy and fulfill my dreams of continuing my career and family. Gradually I was able to work more hours and we adopted our daughter when she was 11 years old. She was quite a handful but we made it!

I won’t say there hasn’t been tears, frustrations or fear of “flying” again. Life still has its ups and downs, especially as key people in my life have passed away, such as my mom. Along with my husband and sister, she was a strong influence on my life. Recently, my medications, especially lithium, have caused weight gain and affected my kidneys and I sleep a lot – frustrating complications.

Now the mirror image that was shattered is much clearer and the pieces are in place. God always seems to send angels along the way to help keep me on track when life might trigger another bipolar episode. I hope a time will come when I won’t need two faces. I am determined to stay well. For now, I feel very thankful for another quilt to be quilted, another dance to be created, a job that helps others, and, most of all, for my family and friends. I am very blessed.

Malinda: My mental illness

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My mental illness started when I was only 21 years old. My mental illness was from giving birth to my first son. I didn’t have a very supportive family at the time to help me through my problems then, plus I had a husband that just threw me in a psych unit so his family could have my child. I was in there for six months to a year and then I moved to Maine after my divorce to my husband.

In 1994 my second son was born in Maine and I was fine with his birth. I gave birth to my daughter in 1997 and I again had a relapse due to her birth and I was hospitalized that time for one year. I then moved back to Michigan and lived with my parents for some time then moved to Colonial Acres for safety reasons. I lived there for about nine months, then met my wonderful husband, whom I am married to now. Since then I have regained custody of my children, Ashley and Nathaniel.

Life with the children is very fulfilling and they keep me happy with joy. Since I have had my children I have a better home and better lifestyle, as in vehicle outings. I have my own washing facilities. The main thing I do to stay well is take my meds. My payee Ranee is saving my family money to go to Maine this summer and my family is very excited about this because my children were born in Maine and they want to see the hospital in which they were born.

Frank: Taking Baby Steps

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Life for me has not been easy. Growing up I experienced a great deal of abuse. My mother and stepfather had bad anger and drinking issues and regularly beat me for things I didn’t do. I found pleasure in seclusion. Even though it was lonely, it was also safe from the school kids being mean, a pastor who molested me during an overnight youth group activity, and my mother who I thought hated me. I had no self-worth. I was a runaway very early in life, from about kindergarten on.

At 15 I ran away for the last time. I was placed into my father’s house. He was listed on my birth certificate as my father but I had never heard of him and neither of us believed he was my father. He was, however, my bull’s eye for bitterness. At 17 I was with less than desirable friends and we got into a lot of trouble. I was kicked out of school on many occasions and I drank a lot. I broke into a beer distributorship warehouse and was arrested. This ended my relationship with my birth certificate father. I was kicked out.

I was still on a fast track to hell when my grandmother took me in. I had no place to go, but my grandmother never let me down. I think she thought of me as her own son. One of my sisters and I lived there together and life became one big party after another. I was caught selling drugs in school, which ruined any chance of graduating from my home school or any of the privileges of the higher classes, such as dances, prom, sports or anything else. I was told I was going to prison unless I helped the police. I set up my sister’s boyfriend, my cousin, a childhood friend, and a motorcycle gang. I was scared and hurting for what I did. I hid for a long time with different clothes and hair. I knew how bad my sister felt when I betrayed her trust, and I lied in court to help everyone get out of jail. Everyone was let loose but the police were mad at me, everyone hated me and many wanted to kill me. I tried suicide by overdose and then by auto accident but neither worked.

I decided it would be best to leave Michigan, so I moved to Florida. I stayed with a friend and worked, but my drinking and behavior was self destroying. I lost my job due to all my absences and then my place of residence as well. I was on the street with no job, and was hungry, cold, sleepy, and scared. I prostituted myself to anyone with money. I was battered and raped and I hated and was sickened by what I was doing. A man offered to let me stay at his home as long as I did what he said. I hated the men there that were taking advantage of my youth and my setbacks. One night, I had enough and attacked three men with a chair leg. The police showed up and beat me down with their clubs. After two months fighting charges I was given an offer to leave the county and never come back. I spent a few months on a shrimp boat, then worked in a shipyard where I could live in the yard off the streets. I got so drunk and high on pills that I almost died several times and was fired and kicked off the property.

I went home to Michigan hoping all was forgotten, but it wasn’t. I had my sister and her boyfriend to deal with. I fought with them and ended up hospitalized. I tried suicide again and this time was taken to Kalamazoo State Hospital where I stayed for 60 days. I had a few more episodes but after this I started Teen Challenge and progressed slowly. I graduated and returned to my hometown where it all went bad again. My sister, her boyfriend and I all became involved in break-ins and drugs. During one of the break-ins, my sister’s boyfriend was stabbed, leaving a one-year-old daughter. I went to prison. After that, my sister was very bitter. Even though I had tried to save her boyfriend, I failed. He died and I was alive, so my sister blamed me and raised their daughter to hate me.

I met my wife in 1997. She was just another girl, but she got pregnant. We cared about each other but we never truly loved each other and that brought problems. My drinking, my marijuana, and my inner turmoil all became turmoil for my wife. She also had deep issues, including a mood disorder, depression, and anxiety. There was fighting all the time, drinking, smoking pot, and a lot of mental issues between both of us. Our second child was born but now we are no longer together.

My children are my life. My daughter is 9 and my son is 5. I also have three older stepsons who I raised with her and they are very close to me. Right now they are all in state custody. I have my disorders and my wife has hers, but the children love me and they are also happy where they are and that is all that matters to me.

All that is in the past. I am very happy now. I have reconciled with my father and I also speak to my mother and love her deeply. We all just did some growing up, but mainly I did. I am disabled with schizoid affective, bi-polar, post-traumatic stress disorder, and mood disorders. Along with this I still suffer from my past substance and alcohol addictions. I have not drunk in eight years or smoked marijuana in four years. There are no other drugs in my life except my prescribed meds that I have to take. I belong to a very nice church in Cadillac, and I have my own place now, after my parents helped me to nurture me back to a stable mental health. Most of all I belong to a beautiful organization called Club Cadillac. The members and the staff run this club together and we as members learn to be more efficient. At this time I am enrolled in Baker College and I am taking the baby steps I need to to be a caring, loving, productive man. Through God we can do all things!

I care about young teenagers being misled, young adults who has no one to count on, and I care about what others do with their lives.

“Determine that the thing can and shall be done, and then. . . .find the way.” – Abraham Lincoln


NLCMH Peer Support Specialist Takes 3rd Place in Essay Contest

Congratulations to Michigan Protection and Advocacy 2008 Advocacy Essay Contest Third Place Winner Terri R. Stonecipher, for her essay: I’m not handicapped, I have a “disABILITY.” Her writing is inspiring! We have reproduced it here with her permission:

I’m not handicapped, I have a “disABILITY” by Terri R. Stonecipher

When I get up in the morning and look into the mirror, I don’t see a person with a disability; I see me! I see a person who is like everyone else. I have feelings, dreams, goals, and desires - everything except for the label of being disabled, placed there by others, not by me.

If I could say only one thing to the rest of the world around me, it would be for them to see me for my ABILITIES and not be close-minded by my disABILITIES. I’m not asking for a handout, or even for you to feel sorry for me. I’m just asking that you treat me the same way you would want to be treated. If you’re not sure what to do, or say, why not just ask me. Just because I may be different than you, or anyone you’ve ever come in contact with.

I am deaf, and I have a mental disability that I have to deal with. I wasn’t born deaf. I became deaf at the age of 36. There is no medical cure for me. The tiny bones in my ears have hardened and don’t work. I wear hearing aids to alert me to sounds, but other than that, I lip-read. So if you were to approach me, I would request that you always face me when you are talking.

I have a wonderful employer, “Northern Lakes Community Mental Health” who has always gotten me an interpreter for meetings, seminars, and trainings. They have never denied me that request.

My job is to talk with clients, who also have a disability. I assist them in becoming independent and to be productive citizens in their own community. I do all that without an interpreter as I can lip-read my clients. They don’t seem to mind at all that I am what you might call “a little different” or “disabled.”

I really hate the word “handicapped” as I don’t see myself that way. It is just a label that’s been placed there on me. Like I said in the beginning, I prefer the label of “disABILITY” emphasizing my “abilities,” the things I can do without barriers.

The more people know about the barriers, the more those barriers could be removed. It starts with one person. Are you that person?

Recovery Learning Communities - February 2008 meeting materials here

Yoga, tai chi, exercise, stress management, meditation, eating healthy on a budget, food/drug interactions, journaling/poetry/writing, book clubs, art, music, drama, crafts, organizational skills and clutter control, financial planning, building credit, housing and other community resources, first aid, how to access the Internet, and smoking cessation are just a few of the Holistic Wellness ideas generated at the February Learning Communities.

These are what people are interested in learning about to improve their wellness. In the coming months, the Recovery Council will review these ideas and prioritize in order to make some recommendations on what NLCMH can do to improve performance in this area.

We’re expecting to end up with some strategies to connect people with community resources that are already out there, advocate to create new resources in the community that don’t currently exist, find creative ways for people to afford some of the opportunities that cost money, and design some of our own classes and learning opportunities.

The agenda also included watching the new NLCMH stigma busters video, To See What I See, along with brainstorming ideas on where to show this in the community to increase awareness and understanding of mental health issues.

Recovery Council February materials here: REE Discussed

Bob & Kathy

In February, the two Blueprint tasks on the agenda were: 1) continuing work on NLCMH's official organizational definition of recovery, and 2) examining the Recovery Enhancing Environment (REE) instrument which will be used in Blueprint Dimension 2, on Evaluation.

The Council also approved its January minutes, introduced Bob Houghton, who is replacing Brian Cook due to his moving out of the area, and introduced Kathy Meyer who was absent (with notice) the first meeting.

In the Blueprint Task portion of the meeting, CEO Greg Paffhouse described the big picture of what we are trying to build with regard to evaluation (Blueprint Dimension 2).

He explained that we want to measure recovery at Northern Lakes CMH – both the individual’s recovery journey, and the job Northern Lakes is doing as an organization to support recovery. The cornerstone measurement tool we'll use is called the Recovery Enhancing Environment (REE) instrument. This is a self-report survey that gathers information and data about mental health recovery from people who receive mental health services. The Michigan Department of Community Health will be asking all 46 CMHs in the state to use the REE beginning in the summer.

Many consumers across the state studied a variety of other survey instruments and liked this one the best. It is hopeful and builds on people’s strengths and some of the other measures considered focused on the person’s challenges.

Greg explained that the REE asks people where they are in their process of mental health recovery, and what markers of recovery they are currently experiencing.

With the REE, people rate the importance of several elements (such as hope, sense of meaning, and wellness) to their personal recovery, and rate the performance of their mental health service on three activities associated with each of these elements. They also rate the service on factors in the system that promote resilience.

Open-ended questions encourage people to share the wisdom they have gained on their recovery journey, and to say how they think staff and systems could be more supportive of their recovery.

The vision in this area is to have a personal and system-level ongoing process that is simple, reliable, and consumer-driven, describing both formal and informal evaluation of an individual’s progress toward quality of life and including their current hopes and dreams.

What we want to build is a system where:

  • Primary consumer outcomes identified for each service are measurable and observable (e.g., number of crises, percentage of people employed)
  • Consumer and family measures of satisfaction are included in system evaluation.
  • Recovery is evaluated both for the system and the individual; evaluation is aligned with MDCH recovery and satisfaction measurement(s) and CARF accreditation requirements; and in addition promotes local evaluation.
  • High quality data is generated which yields information that is reliable, accurate, valid, complete and drives decision-making.
  • Personal accounts and recovery successes/challenges are included in the assessment of an individual’s progress toward quality of life.
  • Hope is evaluated (i.e., Hope Scales).

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If you or someone you know is at immediate risk of seriously harming themselves or someone else, call 911.


 

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